Quotes & Sayings About Chronic Illness

I'm in a caregiver's relationship with my body, a perpetual internal gauging of wellness. My spine is Hogarth's thermometer. I ascend and descend its rungs a hundred times a day, reading the mercury level. The same dis-ease speaks many languages. If you block one mouth, another will speak. The symptoms represent differently, and as I get older, my translation changes. The prescription changes. Must be vigilant. Must be my best nurse. — Jalina Mhyana

When we make decisions that honor our dreams and priorities, we also make choices about what we won't prioritize. We must embrace these choices as well. — Sarah Hackley

Living in the past is like choosing to cling to a chronic illness. — Asa Don Brown

To me she was beautiful, this artist's model, this film extra, a woman who had been married three times. I think she would understand my chronic illness, my fatigue, and me. I think we would be best friends or pen pals. — Abigail George

Let us be today's Christians. Let us not take fright at the boldness of today's church. With Christ's light let us illuminate even the most hideous caverns of the human person: torture, jail, plunder, want, chronic illness. The oppressed must be saved, not with a revolutionary salvation, in mere human fashion, but with the holy revolution of the Son of Man, who dies on the cross to cleanse God's image, which is soiled in today's humanity, a humanity so enslaved, so selfish, so sinful. — Oscar A. Romero

It's okay that I got sick, I suddenly realize. If Lyme hadn't taken me down so radically, I wouldn't have learned about stillness. I would not have discovered my enormous capacity to endure. I would have not have embraced this deeply contemplative place within my own being. — Katina Makris

My handbag turned into a diaper bag for the chronically ill. — Tracey Berkowitz

Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?
But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit. — Jessica Verdi

The challenges I have faced - among them material poverty, chronic illness, and being raised by a single mother - are not uncommon, but neither have they kept me from uncommon achievements. — Sonia Sotomayor

We all feel inadequate very often. It's only when it gets chronic that it is disturbing to one's emotions and can get out of hand and make you pretty damn miserable. — Taylor Caldwell

He mistook my frustration for anger towards him, which seemed to be typical for us lately. The longer the distance between a correct diagnosis, the greater the silence we shared. — Tracey Berkowitz

Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have.
- CRPS AWARENESS - — Nikki Rowe

Sure, society understands visible shackles-- they get the symbolism of the wheelchair, of prosthetics, of a bumper sticker reading disabled veteran, but they still struggle for comprehension of the profound, invisible shackles that an illness such as [Chronic Fatigue] puts on a person's body. — Peggy Munson

By staying, by shirking the responsibility and effort of leaving, by continuing to occupy this lovely man while giving him neither children nor a public companion nor a welcoming home-do I do wrong? — Anna Lyndsey

It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.
[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview] — Hilary Mantel

The disorders that psychology associates with the dissonance between what parents say to children and what children know to be reality - from deep insecurities to chronic anxiety to depression - are not to be found among the hunter-gatherers I have known. This is not to claim that they are people who know nothing of mental illness. Rather, it is to look at the absence of a particular kind of illness, one that in my own society is somewhere between common and the norm. The apparent sturdiness of the hunter-gatherer personality, the virtual universality of self-confidence and equanimity, the absence of anxiety disorders and most depressive illnesses - these may well be the benefits of using words to tell the truth. — Hugh Brody

It dawns on me that maybe I'm just terrifically lazy; that I might be appropriating other people's invisible sicknesses and disorders and scribbling them on the clipboard at the end of my bed to fool the nurses; so I can indulge in rest cures all day, every day. That I'm even fooling myself. — Jalina Mhyana

The Spoon Theory was created by a friend of mine, Christine Miserandino, to explain the limits you have when you live with chronic illness. — Jenny Lawson

We are always personally under an agitating pressure and cloud of anxiety. And Olmsted himself had grown increasingly susceptible to illness. He was sixty-eight years old and partly lame from a decades-old carriage accident that had left one leg an inch shorter than the other. He was prone to lengthy bouts of depression. His teeth hurt. He had chronic insomnia and facial neuralgia. A mysterious roaring in his ears at times made it difficult for him to attend to conversation. He was still full of creative steam, still constantly on the move, but overnight train journeys invariably laid him low. Even in his own bed his nights often became sleepless horrors laced with toothache. — Erik Larson

That is what chronic illness is . . . a disconnect between what our souls can do and what our bodies can do. — Barbara Lieberman

I didn't want this man touching me in those places. It wasn't that he was being inappropriate, it was just more that he obviously didn't view me as a person, let alone a scared person with actual feelings. He just saw me as yet another scientific specimen there for his own experimenting. I squeezed my eyes shut, cringing the entire time. — Jessica Verdi

If I had to pull an all-nighter studying for a test or too many looming deadlines had me pulling out my hair, I wouldn't end up with just some trendy coffee addiction. I'd end up in a mini-coma, face down in the middle of the studio or on the floor of the community showers. — Laekan Zea Kemp

I'm tired of having to struggle for what seems to come easily to everyone else. — Mercedes Lackey

Depression affects almost 80% of migraine sufferers at one time or another. People with migraine, especially chronic migraine, also are more likely to experience intense anxiety and to have suicidal tendencies. If we want to live happy and joyful lives with migraine, it is vital that we acknowledge and deal with the emotional realities of the disease. — Sarah Hackley

We've gone from a preponderance of acute and infectious disease as a source of premature death to chronic diseases, which are the preponderance of the burden of illness in most of the world. That puts a much higher premium on the prevention of chronic disease than ever in history. — Harvey V. Fineberg

By taking the time to focus on our mental and emotional well-being, we can minimize our triggers and reduce the likelihood of a recurrence. — Sarah Hackley

That's the point. This healthy-feeling time now just feels like a tease. Like I'm in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can't enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we're going to crash-land into a fiery, agonizing death. — Jessica Verdi

Each small accommodation of my physical environment is an admission that things are not improving, that this is not some fleeting horror, that perhaps...But that is the unthinkable thought. — Anna Lyndsey

Dani's mild eating disorder was definitely the most annoying thing about her. One Christmas break I'd gained ten pounds and went up two cup-sizes - a post episode binge that finally made me look normal, like a woman. I would have killed to hold onto that version of me and all Dani did was count calories and complain about her non-existent cellulite. She was lucky. Most people were, they just couldn't see it. — Laekan Zea Kemp

Most people live in fear of some terrible event changing their lives, the death of a loved one or a serious illness. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret: You survive. You adapt, and your life changes, but in the end you go on, with whatever compromises you have been forced to make, whatever losses you have been forced to endure. You learn to balance your fears with the simple truth that you must go on living. — Jamie Weisman

Chronic illness is hard. Pain is hard. Isolation is hard. The financial cost is hard. Grieving is hard and necessary and sometimes takes far longer than we every imagined. — Cindee Snider Re

There is some evidence that chronic severe depression causes some atrophy or shrinkage in the hippocampus. Depressive illness could therefore be seen as a very subtle form of degeneration in some nerve cells. — Stefan Cembrowicz

I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace. — Nikki Rowe

Behind every stressful thought is the desire for things to be other than they are. — Toni Bernhard

No one knows our bodies or our subjective experiences like we do. This means we can rest secure in our knowledge of ourselves and what we're going through, even when the medical profession doesn't understand or believe us. Migraine is a weird and changing disease. It affects all of us differently, and every attack is a little different than the one before. This means that no one can understand your life, symptoms, or illness like you can. This can be incredibly empowering: you are the expert. But, it also carries great responsibility: to live as happily and as fully as possible, you must listen to your body and trust your instincts. — Sarah Hackley

Chronic illness is not caused by a bad gene, or a Gypsy curse, nor is it a function of aging. Chronic disease is caused by chronic nutrient deficiencies. — Peter Glidden

We know that no algorithm can solve global poverty; no pill can cure a chronic illness; no box of chocolates can mend a broken relationship; no educational DVD can transform a child into a baby Einstein; no drone strike can end a terrorist conflict. Sadly, there is no such thing as 'One Tip to a Flat Stomach.' — Carl Honore

Every effective drug provokes in the human body a sort of disease of its own, and the stronger the drug, the more characteristic, and the more marked and more violent the disease. We should imitate nature, which sometimes cures a chronic affliction with another supervening disease, and prescribe for the illness we wish to cure, especially if chronic, a drug with power to provoke another, artificial disease, as similar as possible, and the former disease will be cured: fight like with like. — Samuel Hahnemann

A chronic invalid has but one thought about his identity: He doesn't want to be a sick man. The rest of the discussion seems frivolous to him-an immense privilege of the healthy. Still, I'm a novelist, and so I pursue it. — Nancy Horan

At its heart, Codependency is a set of behaviors developed to manage the anxiety that comes when our primary attachments are formed with people who are inconsistent or unavailable in their response to us. Our anxiety-based responses to life can include over-reactivity, image management, unrealistic beliefs about our limits, and attempts to control the reality of others to the point where we lose our boundaries, self-esteem, and even our own reality. Ultimately, Codependency is a chronic stress disease, which can devastate our immune system and lead to systemic and even life-threatening illness. — Mary Crocker Cook

I know terrorism is real. And I know fear of it distorts public judgment. Terrorism is like a chronic illness. We have to learn to contain it and live with it. — Yochai Benkler

In any case, when we avoid the legitimate suffering that results from dealing with problems, we also avoid the growth that problems demand from us. It is for this reason that in chronic mental illness we stop growing, we become stuck. And without healing, the human spirit begins to shrivel. — M. Scott Peck

The truth of the matter is, Satan and God may want the exact same event to take place - but for different reasons. Satan's motive in Jesus' crucifixion was rebellion; God's motive was love and mercy. Satan was a secondary cause behind the Crucifixion, but it was God who ultimately wanted it, willed it, and allowed Satan to carry it out. And the same holds true for disease. — Joni Eareckson Tada

I know that I'm not the only one who struggles with feelings of self-pity. How many thousands of others are sidelined by the debilitating effects of Lyme disease? Multitudes hover on sofas and beds like me, too drained to do anything more than just the bare necessities of daily functioning. In fact, some can't even do that. Anyone living with chronic illness that imposes severe limitations must experience similar feelings of disappointment, frustration, fear, sadness, and envy. I am not alone. — Katina Makris

My love has saved me. It wraps strong arms around me when I cry with despair;it gives me the routine of a working week to lend vicarious structure to my shapeless days. It brings me daily laughter, a reason to keep washing...and it slices me open with guilt. — Anna Lyndsey

We can feel isolated and powerless when living with chronic illness, but what if your story begins to bridge the barrier or open a way for someone to connect? What if your story offers a glimmer of hope to someone standing at the edge of desolation? ...What if your story starts the conversation? — Cindee Snider Re

I will be living with chronic pain for the rest of my life. I don't have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing. — Sonya Huber

I guess it's human nature to question yourself, to question why all the pain has had to happen? sometimes there isn't any answers it just is what it is and how we make ourselves feel and see through that, is what will determine how we move forward. — Nikki Rowe

You spend a lot of time thinking about how awful the prison is rather than envisioning your future. — Piper Kernan

I felt an attack of my most chronic illness - the pain of missing out. — Steve Toltz

Miraculously recover or die. That's the extent of our cultural bandwidth for chronic illness. — S. Kelley Harrell

Multiple allergies are perhaps the most obvious sign of immune system overreaction. Patients with CFIDS frequently have a past history of allergies, implying that their immune response is genetically primed for a vigorous response. Other patients with CFIDS develop allergic symptoms after the onset of their illness. CFIDS patients have a hair trigger for allergies. — David S. Bell

Take charge of hidden, sneaky sources of chronic inflammation that can trigger illness and disease by wearing comfortable shoes daily, getting an annual flu vaccine, and asking your doctor why you're not on a statin and baby aspirin if you're over the age of forty. — David Agus

Our dogs relieve chronic pain, lift our spirits, sniff out cancer, detect impending heart attacks, seizures and migraines, lower our blood pressure and cholesterol levels, help us recover from devastating illness, and even improve our children's IQ, as well as lowering their risk for adult allergies and asthma. Just think - the unconditional love, limitless affection and to-die-for loyalty of a well-chosen, well-trained, well-cared-for dog could be just what the doctor ordered! — Jack Canfield

My lip trembled, my throat raw, and I started to cry. But not because I didn't look perfect. But because I looked healthy and because I wasn't sure how long I'd stay that way. — Laekan Zea Kemp

I thought having a chronic illness would make my life detour in ways I didn't want to accept, but I've learnt that have a chronic illness made the only detours that are worth the growth. — Nikki Rowe

It isn't depression, or anxiety, though it can sometimes appear as a symptom of these better - known conditions. Often, it emerges with cruel ferocity as a chronic disorder completely unto itself.
Its destructive impact on an individual's sense of self is implied in its very name - depersonalization. — Daphne Simeon

No one in our society needs to be told that exercise is good for us. Whether you are overweight or have a chronic illness or are a slim couch potato, you've probably heard or read this dictum countless times throughout your life. But has anyone told you-indeed, guaranteed you-that regular physical activity will make you happier? I swear by it. — Sonja Lyubomirsky

The books my mother read and reread provided a broader, more adventurous world, and escape from the confines of her chronic illness. Her interior life was enriched even as her physical life contracted. If she couldn't change the reality of her situation, she could change her perception of it. She could enter into the lives of the characters in her books, sharing their journeys while she remained seated in her chair. — Doris Kearns Goodwin

It is food - we now know that food is information, not just calories, and that it can upgrade your biologic software. The majority of chronic disease is primarily a food borne illness. We ate ourselves into this problem and we have to eat ourselves out of it. — Mark Hyman, M.D.

Because the truth was I was tired. I was tired of fighting but more importantly I was tired of losing, of being disappointed. — Laekan Zea Kemp

Happiness will be fleeting if you constantly search for it in places that can be taken away. It's an inside job. — Nikki Rowe

His was an illness that besets the intellectual: the indefatigable will to mastery. Chronic and incurable, it afflicts those who lust after a world that makes sense. — Siri Hustvedt

I hated that the greatest enemy of my lifetime... was also my truest love. — Bailey Vincent

Sometimes I think illness sits inside every woman, waiting for the right moment to bloom. I have known so many sick women all my life. Women with chronic pain, with ever-gestating diseases. Women with conditions. Men, sure, they have bone snaps, they have backaches, they have a surgery or two, yank out a tonsil, insert a shiny plastic hip. Women get consumed. — Gillian Flynn

Remember this: You are the expert of your body. — Sarah Hackley

For some reason the word "chronic" often has to be explained. It does not mean severe, though many chronic conditions can be exceptionally serious and indeed life-threatening. No, "chronic" means persistent over time, enduring, constant. Diabetes is a chronic condition, but measles is not. With measles, you contract it and then it is gone. It can sometimes be fatal, but is never chronic. Manic depression, in other words, is something you have to learn to live with. There are therapies which may help some people to function and function for the most part happily and well. Sometimes a talking therapy, sometimes pharmaceutical intervention helps. — Stephen Fry

Futility. Uselessness. Bloody entrophy. Death matters, at least sometimes. — Diana Gabaldon

The thing is, there is no certainty in this life - in one second your entire world could shift. I'm not saying it will, but I am living proof that It can. We never prepare for tragedy and that's a good thing but my god what's it's taught me is how little we appreciate what we have or some cases once had. — Nikki Rowe

They have been deprived nutritionally, or some illness has not been picked up, or they have not been screened for vision or hearing defects, or they have not had some kind of a chronic illness or error of metabolism picked up. — C. Everett Koop

An hour seldom passed in which she didn't either sneeze, pick her nose, or wipe a bogie onto her snot-encrusted sleeve. But she had such a lovely colour. That pink glow which comes with the flu used to engulf her like an aura. It suited her. She always looked so damn effervescent. — Joss Sheldon

But maybe I could give myself something too - permission to keep trying. Even when it felt like it was all for nothing. Even if trying was all I ever did, I shouldn't stop. — Laekan Zea Kemp

And all my ethical reasoning crumbles to ash in the sheer fact of his presence. Because together, even in darkness, we light up a room; because the clotted guilt inside me breaks up and disperses before a surge of stupid happiness; because I love him, and I know I cannot leave him, am incapable of leaving him, unless he asks me to go. And he has not asked me. And that is the miracle which I live with, every day. — Anna Lyndsey

Chronic disease is a foodborne illness. We ate our way into this mess, and we must eat our way out. — Mark Hyman, M.D.

I think many people with a chronic illness would prefer not to have their chronic illness, simply because it's high maintenance. — Marya Hornbacher

I learned the hard way how desperately primitive is the technology we have for monitoring the health of someone with a chronic illness. — Chris Toumazou

Recently God asked me the same question in a new way, "And if I don't allow you to heal, if I never remove the pain, will you still trust Me? — Cindee Snider Re

The increasing fascination with and funding of genetic technology is simply another medical dead end, another reductionist rabbit hole that will lead us no further toward preventing and reversing chronic illness. — T. Colin Campbell

Physically, mentally, emotionally
it seems like every part of me is broken in one way or another. — Patrick Carman

It's been an incredible odyssey to make the journey from a vibrantly healthy person to someone with a chronic illness. — Karen Duffy

It is not easy to talk about a condition once dismissed as 'the career women's disease'. But women will continue to suffer until we realise the cost of ignoring it — Hilary Mantel

Mental illness

People assume you aren't sick
unless they see the sickness on your skin
like scars forming a map of all the ways you're hurting.

My heart is a prison of Have you tried?s
Have you tried exercising? Have you tried eating better?
Have you tried not being sad, not being sick?
Have you tried being more like me?
Have you tried shutting up?

Yes, I have tried. Yes, I am still trying,
and yes, I am still sick.

Sometimes monsters are invisible, and
sometimes demons attack you from the inside.
Just because you cannot see the claws and the teeth
does not mean they aren't ripping through me.
Pain does not need to be seen to be felt.

Telling me there is no problem
won't solve the problem.

This is not how miracles are born.
This is not how sickness works. — Emm Roy

No matter what stage of illness we are in, whether we've just been diagnosed or we have lived with chronic migraines for decades, there are adjustments we can make to increase joy in our lives and to live more fully. — Sarah Hackley

As with many life-altering events, an autoimmune illness is almost guaranteed to cause you to re-evaluate your priorities. — Joan Friedlander

Dealing with chronic anxiety has taught me to better understand the nuances of mental illness and the very individual nature of it. — John Corey Whaley

Sometimes ... we find that even when we do our best to serve the Lord, we still suffer. You may know someone who faces these most challenging of circumstances: consider the parent whose child becomes ill, for whom everyone prays and fasts with all their heart and soul, but who ultimately dies. Or the missionary who sacrifices to go on a mission, then develops a terrible illness that leaves him or her severely disabled or in chronic pain. — David E. Sorensen

Side note: invalid. Whoever invented that word, and made it the same word as not-valid? That person sucked. — Maria Dahvana Headley

The fork is your most powerful tool to change your health and the planet; food is the most powerful medicine to heal chronic illness. — Mark Hyman, M.D.

Calcification is the hardening of body tissues by calcium salts or deposits. Although calcification itself is not considered a disease, it has been shown to be a significant contributing factor in nearly every known illness and aging condition, including heart disease, kidney stones, gallstones, chronic inflammation, arthritis, cancers, cataracts, eczema, psoriasis, and even wrinkles. — David Wolfe

I felt entirely invisible and uncomfortably obvious all at the same time, sitting there in practically nothing in front of this stranger who was ignoring me. — Jessica Verdi

Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to. — Amy B. Scher

With psychiatric medications, you solve one problem for a period of time, but the next thing you know you end up with two problems. The treatment turns a period of crisis into a chronic mental illness. - Amy Upham (203) — Robert Whitaker

AIDS today is not a death sentence. It can be treated as a chronic illness, or a chronic disease. — Yusuf Hamied

It's easy to put the links between the increases in mental illness, depression, ADHD, and the like, with the speed of the modern world. People never get the chance to do nothing, or when they do, they lack the control to prevent their mind from racing off in a thousand different directions. So much so that their doing nothing becomes a thousand different things and the thousand different things becomes stress, anxiety, worry and fear. Left untreated these simple everyday things become well entrenched in our psyches and start to dominate our lives. We have a chronic addiction with doing and we love to use our busyness as a stamp of our hard work and hectic lives and we get stuck in this busy trap of always doing. — Evan Sutter