Quotes & Sayings About Being In Chronic Pain

The agony of this chronic stage of being cannot be endured for long. At the deepest level, toxic shame triggers our basic automatic defensive cover-ups. Freud called these automatic cover-ups our primary ego defenses. Once these defenses are in place they function automatically and unconsciously, sending our true and authentic selves into hiding. We develop a false identity out of this basic core. We become master impersonators. We avoid our core agony and pain and over a period of years, we avoid our avoidance. — John Bradshaw

Too much profit is being made at the expense of unsuspecting patients. — Melissa Cady

It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.
[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview] — Hilary Mantel

There's a saying that goes something like: 'We are all one drink or pill away from addiction,' and I know this is meant to destigmatize what addicts go through, but I feel like I've been seeing variations on this 'common knowledge' more and more lately being used (on social media) as a cudgel to remind patients to not overdo it," Anna says, speaking to the dual-edged sword of awareness. A motto designed to humanize the experience of addiction has been turned into a weapon that targets people who rely on opioids for pain management, and that translates to real-world stigma. — S. E. Smith

But I had to think to myself that this was normal, because that was the attitude. I was 19 when I went to see my doctor and I was told it was all in the mind.
[Author Hilary Mantel on being told her endometriosis was imagined pain, From Oct 2009 Daily Mail interview] — Hilary Mantel

Mental illness

People assume you aren't sick
unless they see the sickness on your skin
like scars forming a map of all the ways you're hurting.

My heart is a prison of Have you tried?s
Have you tried exercising? Have you tried eating better?
Have you tried not being sad, not being sick?
Have you tried being more like me?
Have you tried shutting up?

Yes, I have tried. Yes, I am still trying,
and yes, I am still sick.

Sometimes monsters are invisible, and
sometimes demons attack you from the inside.
Just because you cannot see the claws and the teeth
does not mean they aren't ripping through me.
Pain does not need to be seen to be felt.

Telling me there is no problem
won't solve the problem.

This is not how miracles are born.
This is not how sickness works. — Emm Roy

I felt an attack of my most chronic illness - the pain of missing out. — Steve Toltz

There is no great reward for being emotionally withdrawn, no pity prize for bottling your frustration. No one is coming to congratulate your chronic self-repression. By opening up, maybe you will inconvenience some people. Maybe you will trigger some conflict. Maybe you will be rejected, criticized, judged. Everything comes with a price and everything has its compensation. Authenticity may require pain, but it also opens the doors to joy, creativity, self-respect, empathy. Self-repression, on the other hand, costs you all the beauty of the world in exchange for a prison of comfort. Is it really worth it? Isn't it time to break free? — Vironika Tugaleva